Connect with CRMO/CNO community organizations, educational resources, and research programs.
Newly Diagnosed Guide→Join a supportive Facebook community of patients, families, and caregivers affected by CRMO/CNO. Share experiences, ask questions, and connect with others who understand the journey.
Comprehensive educational resource providing information about CRMO/CNO diagnosis, treatment options, prognosis, and personal stories. Features guidance on working with healthcare providers and understanding this rare disease.
A 501(c)(3) non-profit organization providing comfort care packages to children and adults diagnosed with CRMO around the world. Founded by a CRMO patient to help others affected by this rare disease feel supported and less alone.
The only dedicated CRMO program in the Pacific Northwest, offering specialized diagnosis, treatment, and research. Home to the CHOIR registry and led by world-renowned experts in pediatric CRMO care.
Childhood Arthritis and Rheumatology Research Alliance conducts collaborative research to prevent, treat, and cure pediatric rheumatic diseases including CRMO. Maintains research registries and fosters advancement in pediatric rheumatology.
Learn about ongoing clinical research for CRMO treatment. Clinical trials help advance our understanding of the disease and develop new treatment options for patients.
We're here to support you on your CRMO journey.